Saturday, April 19, 2025

Return of my seizures – part one

 


Well, my total number of seizures was 2; one in the ER waiting room and another on the gourney in an ER room. I stayed for 2 days and had a bunch of tests run to try and figure out why, after 14 years of being seizure free, I would suddenly have 2 seizures in less than an hours time span.

Well, a little extra context helped. Apparently I had not put my seizure med in my pill holder for an entire week. I had missed a total of 5 doses before I had the seizures.

So now I’m on a higher dose of my main anti-seizure med, and they’ve added a new one. No driving until I’ve been seizure free for 3 months. I haven’t been able to see a neurologist because they are so backed up. I was able, however, to get my meds transferred to the VA, so I won’t run out. I also bought a pill organizer for 4 times a day. I use the extra compartments for my seizure meds only. Hopefully we will catch it sooner if I mess my meds up again.

Like I said, can’t see a neurologist until August 4. So now I just try to adjust to the loss of driving and the increased meds. Interesting thing, I have been falling and stumbling a lot over the past few weeks. I’ll have to research it. As always, thanks for all the support!!

Saturday, March 15, 2025

Visiting my local ER…

 


Well, I’m at the emergency room again. Near the end of February I started having some back pain on the left lower side. I am still having the pain and it is increasing. When I sit or lay down for a while, the pain is excruciating when I stand back up. So, I’m getting it checked out.

So far they’ve given me some prednisone and Toradol injection. After a little while they checked on me and the pain was still the same. So they just came in and gave me some Gabapentin. We’ll see if that works.

2 hours later

I’m home now, resting. First they gave me some prednisone and a shot of Toradol. That didn’t help and since the doctor thinks it is sciatica, she gave me some Gabapentin. I had Gabapentin with both surgeries last year and I had no pain, so she thought it would help. It helped a lot! I still hurt but can get up from sitting or laying down with only moderate pain, not excruciating like it was. Plus she wants me to take some Motrin every day and one of the prescriptions is for Norco for breakthrough pain. I sure hope this solves it.

I sent a message to the VA and my oncologist. Kenn will go pick up my prescriptions after the pharmacy opens. Im going to relax and maybe catch up on sleep since I was up at 4:00 am. Thanks all!!!

Tuesday, March 4, 2025

It's here!

 


It has arrived! My 1 year cancerversary.
Today marks 1 year since I got the good news that I was cancer free!!
Time to celebrate!!

Monday, March 3, 2025

Hair and Sleep

 


Sorry I haven’t posted an update like I said I would. I think I have been sleeping better with the O2. Kenn said I am getting up less often. So far, I have been successful in not getting tangled in the supply tubing. Otherwise, we have had to kick the dogs out of the bedroom in order to keep the cats out. We’re pretty sure Gracie would chew the tubing. Luckily, it’s only while we are both gone that we have to keep everyone out of the bedroom.

I’m not crazy about these pictures, but tonight is the first time I have used any heat styling tools on my hair since I lost it in September of last year. Yes, it’s getting long, and yes, I’m planning to let it keep growing until it gets to about chin level, then I’ll try styling it some more.