Tuesday, April 22, 2025

Seizures – part two

 


Good news!!!!

I spoke to the neurologist and the RN at the VA this morning and the doctor said that Depakote (the new med) can cause stumbling and falling. Over the last week I have been stumbling and falling much more than before they started the new meds. The doctor said that’s not unusual and he recognized the fact that I had missed those 5 doses right before the seizures. So, when I get home I can take the Depakote out of my pill case!! Yay!!!

Saturday, April 19, 2025

Return of my seizures – part one

 


Well, my total number of seizures was 2; one in the ER waiting room and another on the gourney in an ER room. I stayed for 2 days and had a bunch of tests run to try and figure out why, after 14 years of being seizure free, I would suddenly have 2 seizures in less than an hours time span.

Well, a little extra context helped. Apparently I had not put my seizure med in my pill holder for an entire week. I had missed a total of 5 doses before I had the seizures.

So now I’m on a higher dose of my main anti-seizure med, and they’ve added a new one. No driving until I’ve been seizure free for 3 months. I haven’t been able to see a neurologist because they are so backed up. I was able, however, to get my meds transferred to the VA, so I won’t run out. I also bought a pill organizer for 4 times a day. I use the extra compartments for my seizure meds only. Hopefully we will catch it sooner if I mess my meds up again.

Like I said, can’t see a neurologist until August 4. So now I just try to adjust to the loss of driving and the increased meds. Interesting thing, I have been falling and stumbling a lot over the past few weeks. I’ll have to research it. As always, thanks for all the support!!