Monday, January 20, 2025

Sleep study done

 


Had a sleep study last night, in case you haven’t seen that post, here’s the am update…

Well, the sleep study is done. I’ll probably get the the results in about a week. Luckily, the results will post to my app so I don’t have to wait for the doctor to be available.

I had to wear the mask for the entire night. When I first put it on, it was kinda weird but I got used to it. When the O2 started flowing, it felt great. Terrible dry mouth this morning though. 

I sincerely hope this gives us some answers.

Monday, January 13, 2025

Just checking in…

 


Well, the speech difficulties have gotten a little better. I grade each day on a scale of 1-3.

1- not many issues, almost normal

2- somewhere in between

3- terrible with lots of difficulty

Mid-December through the start of the New Year was pretty bad with a lot of 3s. Starting off the New Year, mostly 1s and 2s. I see my oncologist on the 21st of this month. I’ll have labwork done the week prior and discuss it at that appointment. My appointment with my primary care provider still hasn’t been rescheduled at the VA.

But, other than that, I’m doing great. I can walk at my usual pace and going up and down the stairs doesn’t leave me winded anymore.

Thank you all so much for following my journey. It’s helped a lot.

Monday, January 6, 2025

No answers yet…

 


We’re on our way home from my colonoscopy. Everything was good. We have to figure out why I am still anemic…

Sunday, January 5, 2025

Here we go again…

 


I don’t pretend to understand it all, but apparently at my last appointment with my oncologist (November 14), my bloodwork showed that I was potentially bleeding internally. On December 9, I had an upper GI done to see where I was bleeding. It came back normal, so I have to have a colonoscopy tomorrow to check there. I will update with results as soon as I get them, should be a few days. Thanks ya’ll!!

Wednesday, January 1, 2025

Missing words...again

 


Saw my speech therapist today because the speech difficulties have come back full force. I keep a running log of how I rate the day based on a scale of 1-3 with 1 being almost no issues and 3 being very bad. Since 12/12/24 when the difficulties started back up again, I see more 2s and 3s than 1s. Last night was terrible. We were playing catch phrase with some friends and I had a very hard time completing thoughts and being able to express myself. 

My speech therapist said to work on sleep because she believes that is a major component causing the difficulties. I’m trying to get in to see my PCP but I’ve been unable to schedule an appointment with her yet. I’m going to message my oncologist’s office to try to see her sooner than my PCP. I was able to take a nap today, so that’s good. I will post an update when I get some more news.

PS – I have also been losing or forgetting where my phone is multiple times per day, which is unlike me.